I had to visit the oncology department today and I'm pissed off and angry that I've been told to stop taking the trial drug for a while.
'A little break from the drug' they've said. 'A chance for your body to recuperate and recharge' they've said. 'Two weeks off and we'll review it when you come back for your CT scan results. You can have upto 3 weeks off at a time if needed, it's not a problem' they've said.
It all makes sense. My sore feet are very very bad apparently (I've gotten used to them) The dodgy tummy and constant diarrhea is a classic symptom of toxicity, but again something I've accepted and made a joke of.
But I still feel like I've failed.
My plan, my big scheme, my coping mechanism with all of this cancer crap, was to try my very best. To give the drugs trial my best shot and stay on it for as long as I could. To give myself the best chance of making it work. For me not to get a recurrence, for it not to come back. For me to help others in a similar situation by taking part, no matter how hard it was going to be. For there being something worthwhile and meaningful from getting and then fighting cancer. By taking part in the trial and maybe in the future, people, having this drug as a regular and normal therapy. You know, just to make a difference.
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I'm coping mentally. I'm back at work and functioning well. My brain hasn't let me down. My sense of humour is still there. My go ahead attitude to it all is still intact and raring to go. Throw anything at me, you horrible nasty disease, I'm ready for you. My smile, which gets me through most things, is still there.
It's just my body which isn't coping. It's causing me to get infection after infection. Pain. Losing my hair.
It's let me down.
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